CaPSI Launches New Warmline To Support Californians With PPD

CaPSI has now launched a new warmline for women in California seeking help or support for postpartum depression or related illnesses.

CaPSI is a group of volunteers for Postpartum Support International in the state of California.  They answer calls and emails to help moms find the resources they need, whether they are pregnant or postpartum.  You can reach the toll-free warm line at 1-855-227-7462.  You can also email them at capsihelp@gmail.com.

The new warmline was made possible partially by a donation from Jane Honikman, founder of PSI.

Way to go ladies!!!!

What Should People Do To Help You Get Through Postpartum Depression?

When we came upon the subject of mental illnesses in nursing school, I was immediately captivated by the complexity of the human mind. I was so interested in the subject that I fully engaged myself in learningeverything thatthere was possiblyto know about mental illnessesso that when I walked onto the psychiatric ward to start my first clinical day, I was going to help people.

Then I met my first patient.
I left that clinical day feeling frustrated and helplessbecause I had all the concrete nursing knowledge in the world yet I didn't know how to help her. I also felt heartbroken for her and for every person with a mental illnessbecause I never knew the depths of pain a soul could experience until I saw it etched on their faces.
I still didn't fully understand that pain until I was diagnosed with postpartum depression.
To me, my depression is more than just feeling sad. It literally feels like my body has been plopped in the middle of a thick fog where every one of myhuman senses aremuffled. I can't see in front of me. I can't see behind me. Every step I take is with great trepidation because I don't know where I'm going andwhether I'm making a step forward or backwards or sideways.
Quite literally, I am lost. And sometimes it's just easier to not take a step at all so I stay where I was plopped, in the middle of chaos. That space is so terrifying, empty, and dreadfully alone.
So what can you do to help someone who is experiencing this?
For me, the single most important thing that someone can do is to just call, or visit, or email. This lets me know that you are stillwith me and even though I feel completely lost,that you are there fighting through this fog trying to find me.
Because fighting through this fog of postpartum depression takes a village of support and love and encouragement, and knowing that you are there WITH us means the world to us.
Oursupport systems need help, too, in knowing whatthey can do to help us. So what are some of those things? How they can better help you?
Kimberly

Study Finds Support Groups Significantly Reduce Postpartum Depression in India

Science Daily reported this week on a new study published March 7 in Lancet finding that women's support groups "have had a dramatic effect on reducing neonatal mortality rates" in India, while also significantly reducing postpartum depression.

"The effects of the interventions were dramatic: by the second and third years of the trial, the neonatal mortality rate in the areas where the participatory women's groups existed had fallen by 45%. These areas also saw a significant fall (57%) in moderate depression amongst mothers by the third year of the trial …

The researchers believe that improved social capital — the access the group gave women to a wider support network of peers — was potentially the most valuable aspect of the groups and would have contributed towards the improved childbirth and childcare practices and the reduction in maternal depression. It may also explain why such groups have had much greater success than direct — even one-to-one — interventions with healthcare workers."

This is so cool!!More evidence of the power of support groups and social support from peers to reduce the symptoms of postpartum depression and perhaps even prevent it.

Here's the full abstract from the Lancet.

How To Create & Sustain A Postpartum Depression Support Group, Part 3

We are wrapping up this week's 3-part series on starting and maintaining postpartum depression and anxiety support groups. We end with tips from Adrienne Griffen.

Adrienne Griffen, founder of Postpartum Support Virginia

Starting a support group was really hard initially — for the first year, it was only Jyl and me for most sessions. We would ALWAYS stay for an hour, just in case someone showed up, but hardly anyone ever did. It was difficult to stay motivated, but we always covered a lot of business, had brainstorming sessions, and enjoyed each other's company when no one showed up.

That was five years ago. Since then, our group averages aboutfive mothers each time we meet (twice monthly). Here are some things that have helped:

  1. We have it at a hospital that has a Womens and Infants Health Center, so many of the women have delivered there.
  2. We moved the meeting location to a much more visible and easily accessible location.
  3. The hospital advertises the meeting on its website, in its newsletter that lists all courses and groups, and has distributed information about perinatal mood and anxiety disorders and the meeting in discharge paperwork. Having the hospital advertise is one of the big reasons why I encourage others to host their meetings at hospitals (besides the fact that they are stroller friendly with ramps, automatic doors, etc.)
  4. The hospital also hosts a new parents group and a breastfeeding support group, all of which meet on Wednesday mornings (the new parents group and the PPD group alternate Wednesdays, followed by the breastfeeding group each week) in the same location. All the support group leaders stay in touch and we refer moms to the different groups based on their needs. For example, often a mom will come to the PPD group and then stay for the breastfeeding group. The synergy has been tremendous.
  5. We have at least two facilitators for the PPD support group, and recently an experienced mom (her children are in college) has joined us in the hopes of eventually starting another support group. Having the support of other leaders is extremely helpful so we can process difficult situations, rely on each other for scheduling relief, etc.

Thanks Adrienne. I hope everyone found this 3-part series helpful.

Don't forget: If you have a postpartum depression support group that is free and you'd like to list it here at Postpartum Progress, email me at stonecallis@msn.com! I currently list groups from the US and Canada, but welcome info from anywhere!

Photo credit: © Cheryl Casey – Fotolia

How To Create & Sustain A Postpartum Depression Support Group, Part 2

Yesterday I started a 3-part series on how to create and sustain postpartum depression support groups. Today we continue with part 2, with tips from Wendy Davis.

Wendy Davis, Program Director of PSI and founding directorof Oregon's Baby Blues Connection

First let me say that anyone who wants to start a support group should feel welcome to contact PSI to get ideas, materials and support. They can write or call me or their area PSI coordinators. They might also consider becoming a PSI member, or a volunteer, so they can receive training and support, and connect with other people facilitating groups and networks.

Most postpartum support groups struggle at some point with low attendance. However, those of us who have led groups continue to feel rewarded, even if the groups are small. We know that the existence of a supportive place to gather is essential, even if there are one or two people who come.

The first and most essential step to creating a consistent group is to make good connections in your community — with OB and pediatric providers, moms' groups, families, public health, faith communities, hospitals, and other childbirth professionals. Find like-minded people who want to develop this network together. Make sure that your own knowledge and support system match your zeal to provide support to other women. Read Jane Honikman's books, "Step by Step" and "I'm Listening", and the companion book, the PSI Guidebook to Developing a Perinatal Support Network in Your Community. The guidebook has lots of ideas about sustaining warmlines and support groups and an appendix with samples from 11 different groups.

One of the most important things I've learned from PSI and Jane Honikman is that no warmline or support group can thrive without being connected with its surrounding community. It is from your own community that you will find supporters, referrals, resources, funds, and of course the families who need you. Sometimes people want to start a group and feel intimidated by "creating a network," but it can be as simple as making calls to introduce yourself, having brief meetings, or bringing your fliers to providers and explaining what you're doing.

Here are some other tips, once you've connected with others in your area:

  1. Create written materials to announce your group, and share with them providers and on bulletin boards. Have a telephone number people can call to ask questions about the group and put them on your written material.
  2. Talk to people on the phone before they come to group and after their first one, so they have a personal connection and can discuss concerns.
  3. Create group guidelines and follow up procedures so members feel secure about group process. Check in with group members between group meetings.
  4. Post it onMeetUp.com.
  5. Go back out and talk to providers, hospitals, moms' groups, dads' groups, childbirth educators.
  6. Get a little article in your local newspaper or parenting magazine.
  7. Offer free chocolate and free magazines.
  8. Consider finding somebody to donate childcare services where you meet.
  9. Link on websites for local parenting resources.
  10. Make sure your PSI area coordinator knows about your group.

Thanks Wendy! Watch for part 3 tomorrow!

Photo credit: © Cheryl Casey – Fotolia

How to Create & Sustain A Postpartum Depression Support Group, Part 1

There are many healthcare providers and survivors who want to do something to help other women with postpartum depression and ask me about starting or assisting in creating postpartum depression and anxiety support groups. I thought I’d reach out to some really smart women I know who could share tips on starting support groups — How can you get a group going, even if it’s just a handful of people? What should you do to keep it going?

Meeka Centimano, founder of the Postpartum Resource Center of Kansas

Two words come to mind in developing a support group that reaches women with postpartum depression who need it — “collaboration” and “key relationships”. Coming to a support group is a courageous and scary thing in and of itself — coming to a support group looking to a peer leader you know nothing about is an even bigger risk during such a vulnerable time. Don’t misunderstand me, many women come to our groups that know not ONE thing about us, but they often arrive with a bit more fortitude because someone in their doctor’s office said we would be good at helping them. For some it is a physician we know well, a children’s minister that we go to worship with who interacts with young families on a regular basis. It may be a friend that came to our group years ago. It may be the therapist helping perinatal moms that you met at a school event several years ago and have befriended.

The nuts and bolts of leading the actual group are a walk in the park in my estimation. Staying aware of all the people in your life that have access to perinatal moms, leveraging those relationships and fostering trust is the more challenging part, but goes a long way in building a great and sustainable support network. Keep in mind that it is a SLOW and painful process. Also remember that success is not measured in NUMBERS or attendance records. Sometimes the one mom that comes to your group is the mom with postpartum depression that needed to be there alone that week. She needed some intimacy and some one-on-one time. Keep moving ahead — it takes time but the success will come.

Thanks Meeka! Watch for part 2 on how to create and sustain support groups for postpartum depression tomorrow …

How to Get Help for Postpartum Depression If You Have to Wait Months To See A Psychiatrist

After I wrote last week about my opinion that women with postpartum depression should try to seek out a specialist for treatment, I heard from a family physician in a major metropolitan city who told me that her patients now need to wait 5 months to get in to see any psychiatrist, not just a specialist.

My perspective comes from being a family physician in [major city]. Right now, in the health system I am in, we are booking into late April and May for a first appointment with a general psychiatrist. It does take “special clout” to get someone in sooner in my system … and that’s just to see a regular psychiatrist. As a physician I am someone with that special clout, and it still takes me multiple phone calls, begging, etc., to get a patient in any sooner. On top of this, my health system just cut psychiatric and counseling services by 30% because it wasn’t a money maker, and because leadership determined we were doing more than our fair share here in [major city]. Patients are coming in from other health systems because our wait lists are shorter than average.

If someone has an unrestricted insurance plan (and that’s a big “if”) or can pay out of pocket (bigger “if”) or is willing to drive to the inner city county hospital (many of my patients are not), they may be able to go outside the system and be seen sooner. I understand that you would want a loved one to get the best care. But from my perspective I have trouble getting my patients any care at all in a timely fashion.

I appreciated hearing from this doctor about her experience. Among other things, this made me think about how awful it is for a mom with postpartum depression or anxiety who has finally gotten the courage to reach out for help only to be told “Sorry. You’ll have to wait.”For months! I decided I’d ask some healthcare providers I know to provide Postpartum Progress readers with tips on what to do if you want to see a psychiatrist for help with postpartum depression but can’t get an appointment:

Jennifer Payne, MD, PhD, co-founder of the Women’s Mood Disorders Center at Johns Hopkins, suggests:

First, remember if you are having suicidal thoughts or thoughts of harming your baby, go to the ER. They will help you. Otherwise, you can seek immediate help from your primary care physician or OB-GYN. They can start medications while you’re waiting to see a psychiatrist [should you need them]. Also, call a therapist. They can often see you sooner and if they are concerned may have more direct access to a psychiatrist. Check to see if there are any postpartum depression groups at local hospitals or birthing centers for support. And finally, don’t give up. Keep calling around and ask to be on a call list for cancellations.

Ann Dunnewold,PhD, author of Even June Cleaver Would Forget the Juice Box, says that if you need medication for postpartum depression and can’t get in to see a psychiatrist, you should talk to your physician:

When a woman already has a good relationship with a physician (such as an OB/GYN, internist, family practitioner or even nurse practitioner), reaching out to that person can be a much quicker route to treatment. And while psychiatrists may disagree, I’ve seen that when a woman has a good relationship with her regular care provider, that provider often more readily considers the whole person (i.e. lifestyle issues, other underlying illnesses, etc.) Many of these care providers also are more comfortable prescribing medication if the mom is seeing a psychologist for therapy who is willing to be part of the treatment team and give feedback.

Diana Lynn Barnes,PsyD, LMFT,and author of The Journey to Parenthood: Myths, Reality & What Really Matters, suggests working with your therapist to try and get an earlier appointment with a psychiatrist:

I find a 5-month wait for a woman with postpartum depression unconscionable. I know for myself that I have developed a close, collegial relationship with a few psychiatrists in my community whom I know specialize in women’s reproductive mental health so that when I refer clients I can pretty well know that they will be seen within a few days. And I leave room in my schedule so that I can see a new patient within 24 hours.

Erika Krull,MS, LMHP,author ofthe Family Mental Health blogon PsychCentral suggests spending time with other moms for support and considering therapy:

Find a small moms group of some kind — MOPS, church group, library toddler time with some moms, a little weekly play group, quilting group, postpartum depression support group, whatever. Something with regularity and other moms so that relationships can develop and there is some level of obligation that gets you going even if you don’t feel like going. That social support is key. When I didn’t know what was wrong with me I happened to already have a habit of attending a young moms church group. Unbeknownst to me, that was what kept me going until I put the pieces together and got a diagnosis. Also, getting started with a mental health counselor might be quicker and certainly can help the mom start finding ways to cope with her symptoms. Just having that listening ear with a professional filter can also help give some direction, keep an eye on worsening symptoms, etc. Meds work best with therapy, but in some milder postpartum depression cases therapy alone may be enough.

Pec Indman, EdD, MFT, co-author ofBeyond the Blues and board member of Postpartum Support International,says it’s not unusual for women to be told they’ll have to wait a long time to get in to see a psychiatrist, especially those moms without private insurance or those who have medicare/medicaid for only a few months postpartum. Her suggestion:

Any healthcare provider (OB, family practice, etc) can call the University of Illinois at Chicago Perinatal Depression Project’s Toll-Free Consultation Line for Providers at 1-800-573-6121. It may not be as good as getting the patient in now to see a psychiatrist, but it’s better than nothing. Most OBs, family practice and internal medicine docs treat a lot of anxiety and depression. They need moreinformation, though,to rule out mania and information about medication during pregnancy and nursing. That can be provided through consultation with specialists.

In the meantime, Karen Kleiman, LSW, MSW, author ofThis Isn’t What I Expected: Overcoming Postpartum Depression, suggests making sure you don’t have an underlying physical illness that, if treated, would relieve the postpartum depression, thereby eliminating your need to see a psychiatrist at all:

Get a physical and rule out some of the conditions that can mimic depression and anxiety symptoms. Check for thyroid problems, anemia and general blood count.

I thought I’d join in and give you a tip of my own: If you are having a problem getting timely treatment for postpartum depression, or you have issues with insurance or being able to afford treatment, you should consider checking to see whether you are eligible for any clinical trials. If you find one in your area in which you are willing to paricipate, your postpartum depression treatment and related medical appointments may be free of charge and you’ll probably be able to get started right away. (Yesterday, as it happens, I posted of list of current clinical trials going on around the country!)

And finally, from the family physician who e-mailed me, an exhortation that medical schools need to do better to train all physicians on the identification and treatment of postpartum depression:

Training programs in the primary care specialties can and should cover these issues properly. If these programs could be convinced to do a good job with this (and I think they could be), this would go a lot further toward helping more women, no matter where they live, no matter what insurance, no matter if they have empowerment, no matter if they have clout.

Which meds can be used in pregnancy, in breastfeeding, etc., should not be special knowledge. It should be normal knowledge. With 15% of moms getting PPD this is not a special disease. It’s a normal disease. I want it to be a normal part of training for normal docs that a normal patient can access in a normal way. Then the specialists will be available to focus on the truly difficult cases.

Photo credit: © c – Fotolia

Postpartum Among Top 10 Fastest Growing Topics at Meetup.com

How about this tidbit? Today I found out that "postpartum" is one of the fastest growing topics at Meetup.com. It's #7 overall on the top 10 fasting growing topics. I think that trend will continue. I think that more and more moms will create postpartum support Meetups, or at least list their already existing support groups at Meetup.com.

People ask me how Postpartum Progress has become the most widely-read blog on postpartum depression. What did I do? I don't advertise. I'm certainly not a social media genius — I have a hard time keeping up. The reality is that it has nothing to do with me. It could be anybody doing this blog.It has continued togain readers, as haveall the other great PPD bloggers,for the same exact reason that "postpartum" is the seventh fastest growing topic at Meetup.com:

Women going through postpartum depression, postpartum anxiety, postpartum OCD, postpartum PTSD or postpartum psychosis WANT AND NEED TO TALK to other women who are just like them. To share. To see they are not alone. To see they will get well.

I sometimes wonder if that's the most powerful treatment method of all.

I say the more postpartum peer support groups meeting in libraries, Starbucks,living rooms,churches, community roomsandhospitals, the better.To join a postpartum meetup or start your own, click here.

Depression Treatment Reduces Risk To Family Members

NPR just did a story on how depression in a family can increase the risk of any one member of the famimly getting depression or anxiety as well. It's a nice piecethat reminds us that we must reach out for treatment not only for ourselves, but to benefit our loved ones as well.

"Parents with depression can reduce the risk to their children by getting treatment."

One method of treatment this article recommends is family therapy and support groups.

"What we've found works well is participant support groups," says Peter Ashenden, head of Depression and Bipolar Support Alliance. "People get to meet other individuals with the same or similar experiences," he says, and families can see how other families have coped.

You can find support groups for perinatal mood and anxiety disorders here and here. These groups are a great way to get started down the road to recovery.