There are some people who are so vehemently against passage of the Melanie Blocker Stokes MOTHERS Act that they have decided to say misleading things about the people who are outspoken in their support of it, including me. I realize those people have created the picture of me in their minds that helps them perpetuate their beliefs, and that it is fruitless to try and affect that image. Thankfully, what they think has little bearing upon my happiness or my work. I do, however, care very much what you think, so I want tocorrect some information regarding the articles being spread around with false or misleading information, in case you've seen them.
I'm not what they have called a "money-making promoter". I don't make money from Postpartum Progress. Period. In fact, instead of having a six-figure job in marketing like I used to, I now have a zero-figure job, or to be more accurate a negative-figure job. It really burns my ass when someone suggests that I exist to profit off of Big Pharma considering my husband and I pay out of our own pockets for all the expenses associated with this work. Money that we don't get back.I won't quit, though,regardless of how much it costs. You're worth it.
I DOhope to make money in the future, hopefully the near future. I believe the work I do has a value and that someday I will be able to make enough of a small living that it will cover the costs of Postpartum Progress and also allow me to do MUCH, much more to support women with perinatal mood and anxiety disorders. I have dreams of winning the lottery just so that I could create transportation funds for women who can't get to their healthcare providers, pay for childcare, cover healthcare costs for those who have been diagnosed but don't have insurance, fund more research …
As you can see if you look around a little bit, there is currently no advertising on Postpartum Progress. I used to be with the BlogHer advertising network, but I withdrew because most of the ads — Ragu spaghetti sauce, anyone? — just had nothing to do with the topic of postpartum depression. I didn't want to clutter up limited space for no reason. I would, of course, welcome an advertiser or sponsorto help me accomplish all that I'd like to… like say Similac, Graco, Gerber, Baby Bjorn, Huggies, The First Years, Tiny Love … you get the picture. A trusted brand that women use during the perinatal period.
You might ask yourself why Postpartum Progress doesn't have advertising for antidepressants. I happen to have a policy (stated quite clearly in my editorial policy for anyone worth their salt in investigative reporting to find) against any pharmaceutical company advertising, because I wouldn't ever want anyone to question my motives on this blog. Here is the policy, verbatim:
These people have also called into question whether I suggest books on this website simply because, unbeknownst to you, I make money from recommending them. I don't.
"We do list books about postpartum depression and related disorders on this site, but we receive no funding or kickbacks or any other consideration for placing the books on our Read Up list other than the occasional free review copy."
I've probably gotten about 10 or so free books that I keep in my personal perinatal mood and anxiety disorder library. If you think that means I'm some kind of sneaky money-making promoter, well, I'm just not sure what else to tell you. I do also provide endorsements for certain books (the kind that appear on the back cover) but only after being asked, reading them entirely, and saying what I truly believe about the book. Usually I won't do an endorsement unless I happen to know the book's author really well and truly believe in what they're doing. Also, I don't make money off of any of the educational conferences and events I tell you about — as a central source of news on perinatal mood and anxiety disorders it is just part of the job to try and let you know everything that is going on.
In the interest of full disclosure, let's talk about what I have gotten paid for, not because it is really anybody's business, but because I'm an open book and I really don't care. I received $2500 last year when I was selected by WebMD as one of its four Health Heroes of the Year. (I guess WebMD must be in onmy conspiracy with the drug companies.) The money went to Postpartum Support International since it could only be given to a non-profit organization. Working with PSI, I plan to use some to improve the functionality of this blog and the rest to do some research. Other than that, the only thing I've made money on is my speaking engagements. In 2008, Mental Health America of Georgia hired me to do a presentation on the spectrum of perinatal mood and anxiety disorders around my state. They paid me about $5k I think, which was funded through a grant made to them by Pfizer. In the presentation I sharedinformation onALL of the treatments available for perinatal mood and anxiety disorders and share all of the potential benefits and the negativerisks of each method of treatment.
These people seem to think it obvious that I want all pregnant and postpartum women on the planet to be drugged. Heavily. Perhaps they haven't seen the following kind of commentary on Postpartum Progress:
Perhaps they haven't seen the various stories I write on treatments that don't involve medication, like this recent one about research into the effectiveness of peer support:
"I think it's just fantastic that a free and non-medical intervention can be of such help."
Or here. Or here. Or here. Or the ones I've written about problems with medication, like here.
Perhaps they also haven’t heard me give my speech where I talk every single time about the fact that there is no 100% safe psychotropic medication for pregnant women to take, that anyone who tells you otherwise doesn’t know what they’re talking about and that informed consent is extremely important. I talk about the fact that even though current research (and I highlight the fact that it’s current and things may change) shows there is little absolute risk in taking antidepressant medication while pregnant, the minimal risk currently known to exist is a very important consideration for every mom. Each woman should be able to make her own decision, free of stigma about her choice.
Ifone looks at any blog out of context, or only searches for that which provesher point, she is likely to get the wrong impression. If you've been followingPostpartumProgresssince 2004, you know thatthis blog has one single purpose: to provide education and supportto thewomen who suffer and the people who care for them. That is why I put very little extraneous information on this site: I rarely discuss my children's latest exploits, or what I ate for dinner or how my vacation went, because it's not really relevant toareaderwho is in the midst of hell.Instead, I write about research, and support groups, and books on the subject, and whatother women are saying about their experiences.
They also insinuate that my background in marketing and public relations was with pharmaceutical companies. If they were truly the investigative reporters they say they are, they would know that while I worked at the PR firm of Cohn & Wolfe I worked on the Bausch & Lomb, AT&T and Coca-Cola accounts for the 1996 Olympic Games. I have NEVER, not even for one minute, one memo or one meeting, worked for a pharmaceutical client or consulted to a pharmaceutical client. Insinuating so to try and make your point is really taking the low road.
There is, however, one thing I wrote that these people brought up where I actually agree with their characterization that it promotes medication, unwittingly I might add. They point out this old piece I wrote:
"On another page titled, "The Art of Psychiatric Medication," Katherine tells women to hang in there if a medication does not work because for her diagnosis of OCD, she states:
I've taken many medications, including Effexor, Celexa, Seroquel, Risperdal, Wellbutrin, Luvox, Cymbalta, etc. Throughout all of them I was on the road to recovery. Some just worked better than others at treating my symptoms."
She ends the commentary by telling women: "You will find the right medication for you, and you will get better."
I wrote that back when I knew a whole lot less about perinatal mood and anxiety disorders than I know now. I also wrote that back when I knew a whole lot less about being an advocate and trying to help others. I had a very myopic view of the world — I only knew how to talk about what happened to me and then I applied that to everyone else, which is of course ridiculous. I figured since I took medication to get better, everyone else did too. I've learned a lot since then.
It is true that psychiatric medications work differently for different people, and that if medication happens to be part of your treatment you need to be prepared that you may have to try more than one.That is an important bit of information to share. What I also should have said,though, is that my first psychiatrist who put me on all those meds was horrible and untrained and a total nightmare. It wasn't until I left him and found someone who had specific experience in perinatal mood and anxiety disorders that I got a whole lot better. She and I talked in depth about the variety of treatments available to me, I chose to take medication and attend therapy weekly, and the speed limit on my road to recovery went from 35 to 70 mph. In that post I also should have said that your first therapist may not work for you, or the first naturopathic treatment you choose may not work for you. The point I was trying to make, although not very well, was not to give up on recovery. What matters to me is that you GET BETTER. Don't ever give up on getting better.
I plan to continue to attempt tocreate a better experience for women going through perinatal mood and anxiety disorders than I had. I take Postpartum Progress VERY seriously and will continue to do so. I try only to put information on these pages that has been researched and published by trusted resources. If those resources become untrustworthy, or the information changes,I will try and share that with you as well. I know you know that. But I still had to say it, for the record.
Thank you for being so candid and transparent. I think I speak for so many women who read your blog by saying 'Thanks for everything you do to help others with this illness.' You should be paid and very well! You are a hero.
– Postpartum survivor
K,That was well said.You are a beacon of hope for so many.Through all my years dealing with PPD both personally and professionally ,I HAVE met many people trying to capitalize on being "experts in PPD".You are CERTAINLY NOT one of them.I am sorry you have to deal with uneducated idiots like that.Your response was admirable.You are truly a wonderful woman.Thank you for ALL you do!!!!!! jv
Katherine, you are doing a wonderful job!!! You should never have to defend yourself for doing something that is so important. Anyone who reads this blog can see that you are not affiliated with or compensated by drug companies. My question is at what point does this become slander and libel?
I just want to add my appreciation to all that Katherine has contributed to this issue… and also shed some light on the allegations this same writer made against me.
All my advocacy efforts are purely volunteer. I am not paid one dime by any organization. I am not a lobbyist. This has not helped my career, because it is days away from my practice.
In addition, I do not receive ONE penny from the book Perinatal and Postpartum Mood Disorders, nor do any of the authors, all of whom contributed their chapters/time. When the book generates royalties, they go to PSI, not to me. No one gets "kickbacks" for anything.
Finally, my own website generates nothing in terms of income (no advertising). I do not prescribe medications and base treatment recommendations on each unique case. My work with PSI (and this is also true of Katherine) is as a volunteer.
I believe wholeheartedly in this legislation and know that it was NOT written or drafted by ANYONE with ties to Big Pharma… it was inspired by Mary Jo Codey's struggle with PPD in New Jersey. These allegations are ridiculous and actually libelous.
We are here because we want to help. PERIOD.
Susan Dowd Stone, MSW, LCSW
You are my hero. You are providing a great, well-thought out, comprehensive, and unbiased FREE service while at the same time maintaining your intense and undersandable passion and commitment for helping those of us who have, are, or will experience this devastating illness!
Holy Cowpatties, Batman! They've leveling personal accusations now at people who HELP the very women they say they're trying to protect.
I'm speechless…. That's so utterly ridiculous… I'm just speechless.
Katherine,
You are a true leader. One with great vision and enormous passion. Nothing can diminish your efforts and your hard work. You are surrounded by fabulous women who continue to seek guidance and support from you.
How proud you must be. 🙂
Karen Kleiman, MSW
And I echo Sarah–isn't this libel? I read one of the articles…. That's untrue information that is being used to portray you in a negative light… Doesn't that cross a line?
You must be doing something right to be faced with such opposition. THANK YOU for all you do.
Katherine,
There should be more individuals like you, dedicated to helping other women. Your blogging efforts over the past five years have helped innumerable women around the world. Instead of fighting with each other, women should be focused on helping each other. Why do you think it's taken this long to form women-centered health and perinatal programs, and why women are afraid to speak up about their illnesses? It's for fear of being judged and criticized by other women! Why it is that women are so competitive, resistant to helping other women and ever so willing to step on other women when they're down is beyond me. It's only due to efforts of caring, empathetic and truly concerned individuals like yourself that we are making progress at all with respect to public awareness of perinatal mood disorders! You are a true inspiration!
Thank you so much for your kind words. All of you! They really mean a lot.
My husband asked me to add the following:
My wife believes that women can get better from treatment that may include therapy and/or medical prescriptions that are tailored to each woman. She believes that whatever course of treatment they choose that they need to know that they are loved and supported. She believes that her treatment saved her life. She also believes that she should help other women and this is her life’s work. She believes that it’s her calling. I believe it is as well. We believe we should support this cause with our modest means. We do this even though it costs us thousands of dollars per year. We believe that her work is that worthwhile. I will not stand by while my wife is attacked by useful idiots supported by the dark shadow attacking any site in America that might, even tangentially, support the use of medication in the treatment of people with mental health issues.
I'd also like to point out that the legislation was in response to Melanie Blocker Stokes and was inspired by her struggle and the huge amount orf work that her mother Carol has put into this issue. Carol has no ties to Big Pharm either. Please don't forget them!
You do really good work. Thanks so much for all you're doing!
I've seen people stoop to pretty low levels in their lives. But trying to malign and libel someone doing NECESSARY work to help women at their most vulnerable just seems to top the list.
Just ignore them and keep up the good work.